Wednesday, November 22, 2006

Praises raining down in Seattle!

The front of Seattle Children's Hospital - the Giraffe entrance.


Woohoo praises are coming down - and I had a struggle geting on to here!

First of all the family made it here safely and we have a room at the Ronald McDonald house - what a blessing being it is Thanksgiving weekend and the hotels are booked and my pocket book is empty.

Starting off where I left off! First of all this is a huge hospital and we are figuring it out!!

Josh had to have another MRI - he was not happy - but we are negotiating for a Nintendo DS - and I was able to go with him and stay in the room. This time we had music and were rocking to Steven Curtis Chapman! I had to tell him to quit wiggling his feet! He did another awesome job and they were pinpointing FRED and checking his spine.

Grandpa Norm and Grandma Bev showed up and were in our room when we got back. What a blessing to be surrounded by loving and familiar faces. We were blessed to get the MRI tonight as the technician stayed late to do it - so we could have results.

Then it was the waiting game - Josh is loving TV and watching some great oldies and cartoons. He missed dinner again - because they all thought we were still in ER - but the awesome floors have stashes we can get into any time so he has munched and is ready for breakfast.

My Mom, Grandma Phyllis, Bruce and Sarah showed up after the others had left for Ronald McDonald house. I took the chance to sneak out and put on jammies - as they brought the clothes. As I was changing - in comes a doctor - and not just any doctor but THE DOCTOR.

Now remember this about 10:15 Thanksgiving Eve and our doctor comes apologizing for not being here earlier as he was in a conference. So let's have the praises ring out! He is awesome, Josh adores him and so do we. I think he is younger than us - makes me feel old.

Josh's tumor is a 1 out 50,000 chance of happening - but guess what - this team of neurosurgeons remove about 3 out of 4 cases. Woohoo! More praises, the tumor is not growing that quickly - so we have a littel time, and it is not spreading - it did not go down his spine!!!

There is more coming. We are not planning treatment until the other two doctors observe the MRI - yes our Dr Jeff has already seen the new ones - but he is thinking they will put a hole between the front ventricles and let the fluid drain that way - and see if the symptoms clear up. Also taking a biopsy - finding out results and then maybe just treating with radiation. We are going to zap FRED! This is not definite as there are three ways to go - but the peace and hope he shared tonight was amazing and the confidence we have in him.

So for Thanksgiving we are just going to be a big family hanging together. We will have a big consulation tomorrow and then surgery Friday morning. We are in Seattle for God's big plan and letting us have the best team of surgeons in the world on my Josh!

Another praise - two beds besides Josh's in our room - so Bruce and I are sleeping good tonight! They have Josh hooked up to an IV and monitors and will continue checking on him every two hours - a great nurse Sandy - thank you for blessing us! But Josh is back and smiling - he was getting pretty grumpy earlier and not into - now we see an end!!!

When can we come home - depending on results of the biopsy - as early as next weekend! I can just jump for joy. Instead I went to the lovely chapel and praised and sang to our Lord. Had to go there so no one would hear.

Your prayers are amazing and sustaining us and just giving us the peace that God is in control. Sarah is worried - but hey she is here and I adore my little girl. My children are such a blessing, not counting the big guy!

Well off to answer some mail! Bless each and everyone of you that have posted to the blog - what joy and happiness. I am printing them off to share with everyone tomorrow morning.

As we share our Thankgiving blessings tomorrow - each and everyone of you is on the top of the list. Thank you! You are prayer warriors!!!!

God's blessings and grace to you!

The Henry's (sort of missing Captain)
Bruce, Lori, Josh, and Sarah

5 comments:

britt said...

Hey Josh and family. Glad to hear you are finally done with tests for the day. Surprised to hear you ended up in Seattle, but know you are in great hands. Don't they say rain is good luck! They have an amazing team up there as well and will take wonderful care of you and your family. Missing you guys as my patient tonight. Stay strong and keep us posted.

Brittany, RN
St. Charles Med Ctr

Chellers said...

Seattle Wow!, well you are where God wants you to be, he has put you in the best hands possible, besides his own. I am continuing to pray. I am very proud of you Josh!

Sandi said...

Hey Josh and Bruce, Lori and Sarah
know that you all will be in our prayers today as we gather with family and friends to give thanks to the Lord for all His blessings.
Even in our trials!
Lori, you are awesome!! Stay strong and tell drummer boy we will keep the drums warm for him.
"Grandma" Sandi

The Stoe's From Minnesota said...

I'm sure glad to hear that your family is together safely and that you have such qualified doctors surrounding you. You are in the right place. My prayer for you is that you can all be done with this real soon and get beck home to Captain R-S. I am sure Captain is wondering where you are and is missing you. Your faith in God is inspiring. Good luck, Josh!

Richard Lighthill said...

Dear Josh, Lori, Bruce, and Sarah,
We have been thinking and praying for you at every available moment. We're glad to hear that the Dr. came and started things moving. We will pray for the right treatment to be given, wisdom from the Lord.

Have a blessed Thanksgiving, giving thanks in the midst of turmoil. God is with you. We love you.
Denese